Nov 6A grandson who turned helplessness into a lifelong mission to find answers.A father of three who found “the brightest light” in community after his diagnosis. A 12-year-old who organized a dance-a-thon to honor her grandfather. A husband and care partner who describes his wife as “my person.” These are journeys of courage and purpose from the #Lewybodydementia community. Your generous donation will create meaningful connections, give hope, and ensure no one has to face Lewy alone. Read their stories and give today at the 🔗 in bio. #Dementia #DementiaCare #TogetherWeCan #LivingWithLewyLatest
Nov 6A grandson who turned helplessness into a lifelong mission to find answers.A father of three who found “the brightest light” in community after his diagnosis. A 12-year-old who organized a dance-a-thon to honor her grandfather. A husband and care partner who describes his wife as “my person.” These are journeys of courage and purpose from the #Lewybodydementia community. Your generous donation will create meaningful connections, give hope, and ensure no one has to face Lewy alone. Read their stories and give today at the 🔗 in bio. #Dementia #DementiaCare #TogetherWeCan #LivingWithLewy
The Lewy Body Dementia Association extends its deepest condolences to the…♥ 543 · Oct 29
Twelve years after his passing, Robin Williams’ story continues to shed light…♥ 543 · Aug 11
A diagnosis that finally has a name.♥ 72 · Oct 1
Walk in honor, in memory or in support.♥ 70 · Sep 17
Get ready to walk with us at the 13th Annual LBD Walk for Awareness on…♥ 69 · Aug 25
Awareness is a starting point.♥ 65 · Oct 2
The Lewy Body Dementia Association extends its deepest condolences to the…
♥ 543 · Oct 29
Twelve years after his passing, Robin Williams’ story continues to shed light…
♥ 543 · Aug 11
A diagnosis that finally has a name.
♥ 72 · Oct 1
Walk in honor, in memory or in support.
♥ 70 · Sep 17
Get ready to walk with us at the 13th Annual LBD Walk for Awareness on…
♥ 69 · Aug 25
Awareness is a starting point.
♥ 65 · Oct 2
Lewy Learning CenterA go-to place for on-demand learning. Courses are available to watch at any time, share with friends and family members, with unlimited viewing options.
Lewy Trial TrackerFind LBD studies that need participants
- Lewy Line
Need support services?Call the Lewy Line.
- Support Groups
DIAMOND Lewy Management ToolkitBetter LBD symptom management starts here
There is less than one week until the final conference in the Lewy Body Dementia Association (LBDA) 2026…
Nov 2
In high school, Dr.
Oct 2815 likes
Join us online or in person for the final conference of the Lewy Body Dementia Association’s (LBDA) 2026…
Oct 277 likes
Unlike some other dementias, #Lewybodydementia (LBD) does not have clearly defined stages…
Oct 2612 likes
#Lewybodydementia (LBD) can cause changes in thinking, movement, mood, sleep, communication and perception.
Oct 242 likes
Before “Uncle Lewy” (as Todd Doty often calls #Lewybodydementia) entered his life…
Oct 2310 likes
Should participants in research studies be offered the option to receive their individual test results?
Oct 172 likes
Join the @LewyBodyDementiaAssociation's (LBDA) 2026 Community Conference Series for a day of learning…
Oct 157 likes
In one of the last actions before the United States Senate left for their current recess…
Oct 1322 likes
About
The Lewy Body Dementia Association (LBDA) is the leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD), the second most common form of neurodegenerative dementia affecting approximately 1.4 million people in the United States alone.
To optimize the quality of life for those affected by Lewy body dementia, we accelerate awareness, advance research for early diagnosis and improved care, and provide comprehensive education and compassionate support.
LBD is a disease that does not discriminate. It has and will continue to affect individuals from every gender identity, race, religion, sexual orientation, and socioeconomic background. Because of this, LBDA focuses on serving all individuals affected by LBD. It is imperative that our organization continues to be intentional in growing our understanding of the challenges faced by individuals living with LBD. LBDA is committed to advocating for equity and inclusion in research and making access to clinical care and support accessible to all.
Educational resources to assist individuals with LBD, their families and healthcare providers.
Find the latest information and research to increase awareness and understanding of LBD.
LBDA s 2026 Community Webinar Series, Insights, Innovations & Everyday Impact, features a free, monthly webinar to help you live optimally with Lewy.
Whether you give once, or throughout the year, give so that no one will face LBD alone. Give today.
Lilburn, GA
- Based in
- Lilburn, GA
- Founded
- 2004
- EIN
- 05-0577683
- Website
- lbda.org
- @lewybodydementiaassociation
- Health