Should participants in research studies be offered the option to receive their individual test results?

For people living with Parkinson's disease or dementia with Lewy bodies (DLB), that question has rarely been studied. Learn about a new national survey, led by Melissa J. Armstrong, MD, MSc, FAAN, and Hannah Fechtel Jury, MPH, at the University of Florida's Dorothy Mangurian Clinical-Research Headquarters for Lewy Body Dementia — an LBDA Research Center of Excellence — aiming to change that. With funding from The Michael J. Fox Foundation and support from the @LewyBodyDementiaAssociation, and building on earlier focus group findings, the team is asking people with Parkinson's or DLB, and their care partners, how they feel about receiving research results. Read more at the 🔗 in our bio. #Dementia #DementiaResearch #Neurology #Neurodegeneration #Lewybodydementia