While the world chases Black Friday bargains, families living with Charcot-Marie-Tooth disease are longing for something you can’t find in any store: the chance to hold onto their independence, preserve precious abilities and reclaim movement that CMT threatens to take away.

For them, every day is about fighting to keep the dexterity, mobility and freedom most of us take for granted. When Jenny was diagnosed with CMT in 2018, she had no idea it would uncover a long-hidden family connection — her maternal uncle and her two daughters also tested positive. Born with clubbed feet and mild arthrogryposis, Jenny has faced mobility challenges her entire life. As CMT progressed, severe breathing issues led to a tracheostomy and ventilator six years ago, taking away her ability to work, drive and even speak. Jenny calls it “the most devastating and frustrating” loss of all. Once passionate about cooking, baking, decorating and singing with her kids during the holidays, she now relies on others to carry out those traditions. Still, she finds joy in what she can do — gift shopping, wrapping presents with her husband, and laughing as the family belts out The Muppets’ 12 Days of Christmas: “It’s not Christmas until we all get through it and BA DUM DUM DUM as loud as possible.” What matters most now is time with loved ones — listening to their laughter, conversation and jokes. “We are a goofy bunch, and I love that.” Your gift today moves us closer to that future. Together, we can give Jenny — and everyone living with CMT — the greatest gift of all: a cure, and the time to continue making memories and enjoying the traditions they love. DOUBLE your donation today at cmtrf.org/the-greatest-gift