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CMT Research Foundation
We made the 2026 Global CMT Research Convention available for everyone! Browse every talk at cmtconvention.cmtrf.org.

CMT Research Foundation · 21 posts

CMTRF org

We made the 2026 Global CMT Research Convention available for everyone! Browse every talk at cmtconvention.cmtrf.org.We made the 2026 Global CMT Research Convention available for everyone!Nov 221 likesWe've got a data tool that's going to make CMT research faster and cheaper. Come hear about it! cmtrf.org/webinarsWe've got a data tool that's going to make CMT research faster and cheaper.Oct 1516 likesInterested in the Global CMT Research Convention in September? We've got a webinar coming up on August 6th to break downInterested in the Global CMT Research Convention in September?Aug 453 likesThinking about attending the 2026 Global CMT Research Convention? Our CEO Laura MacNeill explains what you can get out oThinking about attending the 2026 Global CMT Research Convention?Jul 3014 likesAs the number of gene therapies in trials for CMT continues to grow, how those gene therapies are regulated will becomeAs the number of gene therapies in trials for CMT continues to grow…Jul 1317 likesWe've highlighted the promise of gene therapies in our DEMYSTIFIED webinar series. It concludes on July 16 with a discusWe've highlighted the promise of gene therapies in our DEMYSTIFIED webinar series.Jul 717 likesRegister to learn about how gene therapies are regulated and how you can help shape the future. cmtrf.org/webinarsRegister to learn about how gene therapies are regulated and how you can help shape the…Jul 120 likesGene therapy programs are showing real promise, especially for genetic diseases like CMT. Learn more through our Gene ThGene therapy programs are showing real promise, especially for genetic diseases like CMT.Jun 1751 likesOur GENE THERAPIES DEMYSTIFIED series starts May 7; sign up at cmtrf.org/webinars and bring your questions!Our GENE THERAPIES DEMYSTIFIED series starts May 7…Apr 2353 likesSign up at cmtrf.org/webinars!Sign up at cmtrf.org/webinars!Apr 1723 likesThe CMT Research Foundation is funding a novel digital-endpoint project with Dr. Wolfgang Pernice at Columbia UniversityThe CMT Research Foundation is funding a novel digital-endpoint project with Dr.Feb 2019 likesJoin us Thursday, February 12, 2026 at 7pm ET for a live discussion with Daniel Brennan, NMD Pharma’s SVP of Corporate aJoin us Thursday, February 12, 2026 at 7pm ET for a live discussion with Daniel Brennan…Feb 916 likesThe CMT Research Foundation congratulates NMD Pharma and, above all, the 81 individuals who took part in the Phase 2a SYThe CMT Research Foundation congratulates NMD Pharma and, above all…Feb 337 likesAre you curious about the clinical trials currently underway for Charcot-Marie-Tooth disease? Have you thought about parAre you curious about the clinical trials currently underway for Charcot-Marie-Tooth…Jan 1615 likesThere are only a few hours left in 2025, and time is running out to make your tax-deductible, year-end donation to suppoThere are only a few hours left in 2025, and time is running out to make your…Dec 31, 202523 likes2026 holds promise for Charcot-Marie-tooth disease patients and their families. CMTRF’s investment in critical research2026 holds promise for Charcot-Marie-tooth disease patients and their families.Dec 31, 20256 likesIf you joined us in Cambridge this past September, you witnessed something truly special: a powerful gathering of patienIf you joined us in Cambridge this past September, you witnessed something truly special…Dec 29, 202521 likes⏰Time Is Running Out — Triple Your Impact Today: cmtrf.org/the-greatest-gift/ This #GivingTuesday, your gift will be tri⏰Time Is Running Out — Triple Your Impact Today…Dec 2, 202519 likesToday is #GivingTuesday and all donations made before midnight will be TRIPLED to accelerate critical research toward trToday is #GivingTuesday and all donations made before midnight will be TRIPLED to…Dec 2, 20258 likesTRIPLE YOUR DONATION TODAY! cmtrf.org/TheGreatestGift Today is #GivingTuesday and all donations made before midnight areTRIPLE YOUR DONATION TODAY!Dec 2, 20254 likesWhile the world chases Black Friday bargains, families living with Charcot-Marie-Tooth disease are longing for somethingWhile the world chases Black Friday bargains, families living with Charcot-Marie-Tooth…Nov 28, 202514 likes

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Country Music Superstar Alan Jackson, who has been open about his diagnosis with CMT, is wrapping up his career with a fCMT Research Foundation EssentialsOne of the greatest barriers to developing therapies for Charcot-Marie-Tooth (CMT) disease has been the lack of sensitivCharcot MarieWe made the 2026 Global CMT Research Convention available for everyone! Browse every talk at cmtconvention.cmtrf.org.ConventionAs the number of gene therapies in trials for CMT continues to grow, how those gene therapies are regulated will becomeTherapiesThe CMT Research Foundation is launching an innovative fundraising approach for CMT4C. Through the Community Leaders inPatientsThe Zero K Fundraiser Run was a huge success, and we look forward to using the funds for driving CMT research toward a cCure