Early morning flight with my Tully!

✈️❤️ Charlotte, here we come! Tomorrow, I’ll join the Patient Perspectives panel at the PhRMA State National Meeting to share what navigating sickle cell care has taught me as a mother and advocate—and what families need policymakers to understand. We’ll talk about access to treatment, the barriers that can stand in the way, and why patients and caregivers need to be part of shaping the policies that affect their lives. Having Tully beside me makes this trip especially meaningful. So much of what I bring into these conversations comes from our lives, and from the families we serve through the MTS Sickle Cell Foundation. Grateful for the opportunity to carry those experiences into the room—and for a little mother-daughter time along the way. ❤️ #SickleCellAwareness #PatientAdvocacy #HealthEquity