Closing out Sickle Cell Awareness Month with a full heart.

❤️ Yesterday, I had the honor of joining Brian Lehrschall and Amanda Mitchell for the Patient Perspectives panel at the PhRMA State Advocacy National Meeting, moderated by Kashae Williams. Together, we spoke about access to care, the realities families navigate, and why patients and caregivers must have a voice in the policies that affect their lives. My fellow panelists were incredible, and the standing ovation at the end was truly moving. I’m grateful for the warmth in that room and the willingness to listen to the experiences behind the policies. Thank you, PhRMA, for making space for this conversation. Having Tully beside me made it even more meaningful. ❤️ As September comes to a close, families continue navigating sickle cell every day. Our commitment to education, support, and advocacy continues with them. We carry our families and our communities into these rooms, with the hope that what we share helps make care easier to reach. #SickleCellAwarenessMonth #PatientAdvocacy #HealthEquity