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Kennedy's Disease Association
Kennedy's Disease AssociationFebruary 28, 2026

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Closer than ever!

💗🦓 #RareDiseaseDay #KDA #KDAConference2026 #rarediseaseawareness #kennedysdisease #SBMA
Kennedy's Disease Association Essentials
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Explore the KDA Gift Shop and show your support with official Kennedy’s Disease Association merchandise, just in time foExplore the KDA Gift Shop and show your support with official Kennedy’s Disease…Dec 12, 20254 likesKDA is pleased to announce our 2026 SBMA Research Grants and Waite-Griffin SBMA Fellowship programs. Through these progrKDA is pleased to announce our 2026 SBMA Research Grants and Waite-Griffin SBMA…Apr 163 likesThe 10th Annual Dim Sum Give Some is this Saturday, April 18th in Milwaukee, WI! Chefs Dan Jacobs and Dan Van Rite are pThe 10th Annual Dim Sum Give Some is this Saturday, April 18th in Milwaukee, WI!Apr 143 likesLooking for Kennedy’s Disease resources? We have guides for patients, caregivers, and clinicians. Check out our website:Looking for Kennedy’s Disease resources?Mar 93 likesWe’re excited to introduce something new: the KDA Online Raffle! Along with our popular in-person Silent and Live AuctioWe’re excited to introduce something new: the KDA Online Raffle!Feb 203 likesWe’re excited to share some news! The Kennedy's Disease Association has been evaluated by Charity Navigator, the nation’We’re excited to share some news!Feb 123 likesThe Kennedy’s Disease Association is proud to launch KD Voices, a new initiative designed to bring the lived experiencesThe Kennedy’s Disease Association is proud to launch KD Voices…Oct 12 likesBy recommending a grant to the KDA through your DAF, you can help fund research, education, and support programs for indBy recommending a grant to the KDA through your DAF, you can help fund research…May 52 likesLooking for support groups? Visit our website to find them: https://kennedysdisease.org/living-with-kd/support/Looking for support groups?Apr 302 likesDr. Rachel Harding (University of Toronto, SGC-Toronto), in collaboration with Agora Open Science Trust and the StructurDr.Apr 282 likesJohn, KDA’s Treasurer, was recently featured on For The Love of Boomers, a YouTube channel created by John Frantz, authoJohn, KDA’s Treasurer, was recently featured on For The Love of Boomers…Apr 262 likesThe zebra is the mascot for rare disease patients because, in medicine, zebras represent uncommon answers. One out of evThe zebra is the mascot for rare disease patients because, in medicine…Feb 262 likes