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About

Webinar

The NF Collective is hosting its next webinar on October 28, 2026. Register to learn important skills, including how to prepare, ask thoughtful questions, and communicate effectively with healthcare professionals. We hope to see you there! #endNF #NFstrong #curenfwithjack

Join the NF Collective his Wednesday for the Career Readiness Webinar! Register using the link in bio. This is an amazing opportunity for all students and adults living with NF to learn essential job searching skills, resume writing tips, and more! #endnf #NFcollective #curenfwithjack #NFStrong

Join us September 30, 2026 at 7PM EST for the next NF Collective Webinar! Use the link to register now to learn more about career readiness! #endNF #NFstrong #NFcollective #CureNFwithJack

Attention NF Community! Join the NF Collective in this Back to School Webinar THIS WEEK. Starting the school year off with the right tools to succeed is especially important for people navigating education with a rare disease. The English seminar is on August 26th and the Spanish seminar is on August 27th. Click this link or scan the QR code to register for the English seminar: https://us02web.zoom.us/webinar/register/WN_8x-QkvAIRAWcCiWqTFH4Rg#/registration Click this link or scan the QR code to register for the Spanish Seminar: https://us02web.zoom.us/webinar/register/WN_fNbSZOBRSE2P0heoitfJIg#/registration

Attention NF Community! Join the NF Collective in this Back to School Webinar. Starting the school year off with the right tools to succeed is especially important for people navigating education with a rare disease. The English seminar is on August 26th and the Spanish seminar is on August 27th. Click this link or scan the QR code to register for the English seminar: https://bit.ly/NFwebinarAugust-english Click this link or scan the QR code to register for the Spanish Seminar: https://us02web.zoom.us/webinar/register/WN_fNbSZOBRSE2P0heoitfJIg#/registration

JOIN US TODAY, WEDNES. JULY 22nd! Coming up next in the NF Community Webinar Series is a feature on "Navigating Stress & Cultivating Wellness." Living and loving with NF is more than research, tests, and exams - it's about quality of life for all who are touched by NF. Join our host Tracy Wirtanen, CEO and Founder of the Littlest Tumor Foundation, as we welcome guest speaker Samantha Blain. Come expand your NF network, and enjoy community this Wednesday evening. It is completely FREE! We look forward to seeing you there! 💚 Register at https://bit.ly/NFwebinarJuly2026 Reach out with any questions!

Attention NF Community: Join The NF Collective on June 24, 2026, for an empowering webinar for individuals affected by NF. Register below to learn how to advocate for yourself! #EndNF #NFstrong Go to this link to register: https://bit.ly/NFcollectivewebinar

Happy Parent Appreciation Day to all the NF Parents out there! Remember - you are never alone. #parentappreciation #NFStrong #EndNF

Today is to day- wishing all of those at the 3rd Annual Swing with Izzy Golf Classic a wonderful day of golf! Izzy and Stand with Izzy give us so much hope 💙💚 #endNF #nfawareness #nfstrong💪🏻

Happy birthday to our co-founder, @jakeburke1! Your dedication to CureNFwithJack is inspiring and we are so grateful for all the work that you do! #endNF

It's that time of year again! We are so excited to be hositng our 14th Annual Golf Classic on October 26, 2026. Our golf tournaments allow us to raise both awareness and critical funds while creating lasting memories with the members of our growing community! Stay tuned for the registration link and information about sponsorships. #curenfwithjack #endnf💙💚 #nfstrong #golftournament

Introducing this year's Junior Advisory Board! We are so excited to have such an amazing group of high school students dedicated to CureNFwithJack's Mission! Thank you Grace Burke, Austin Valencia, Saniah Moultrie, Campbell Zalubowski, and Anna Friedman! We can't wait to follow along with all that you do. @curenfwithjack.juniorboard

Central to CNFWJ’s mission is the involvement and support of people both within and outside of the NF community. You don’t have to be personally affected by NF to make a difference. Your time, talent, and generosity can have a profound impact. Every golfer, sponsor, donor, volunteer, and supporter helps us build on this progress and move closer to a future where people with NF have better treatments, better support, and ultimately, a cure. Go to the link in our bio to register or become a volunteer. #golftournament #curenfwithjack #EndNF #nfstrong

An amazing time for an amazing cause. These golfers showed up for us last year, and we can't wait to do it all over again next month. Join us for out 14th Annual CureNFwithJack Golf Classic and help us make an even bigger impact on the NF community. Grab your foursome and register now. Click the link in our bio to register, sponsor, or become a volunteer! #golftournament #curenfwithjack #endNF

For the NF1 community, Childhood Cancer Awareness Month is also an important reminder of why the importance of medical research cannot be overstated. Children with NF1 have an increased risk of certain tumors and cancers, and continued research is critical to developing better ways to detect and treat these complications. We stand together in the fight for a world where children get to be children. #childhoodcancerawarenessmonth #endNF #curenfwithjack

Last week, the House Appropriations Committee included $25 million for the Congressionally Directed Medical Research Program – Neurofibromatosis (NF) Research Program in its Fiscal Year (FY) 2027 Defense spending bill. This is a major step for NF research! #endnf💙💚 #nfstrong💪🏻

The Poker Tournament is back, but this time, it's official! Last year was so much fun and we know this year will be even better. We are so excited to see all of you on October 30th at 7pm at the Crooked Creek Clubhouse💙💚 Register now by going to curenfwithjack.org or using this link: https://events.handbid.com/auctions/2026-oct-poker-tournament #curenfwithjack #pokertournament #endNF

Have you registered yet? We cannot wait to see you this October 26th at Iron Horse Golf Club! Play with CureNFwithJack, where every round we play is about something much bigger than golf. Our mission is to advance a wrap-around approach to NF—funding research while expanding programs and initiatives that address the challenges people with NF face throughout their lives. Click the link in our bio to register yourself or your foursome and look at our sponsorship options. See you in six weeks! #curenfwithjack #golftournament #endnf #staywithjack

Here at CureNFwithJack, we focus on the whole lifecycle. That's why we want to feature this article and webinar from Children's Tumor Foundation and Dr. Ethan Lester, where he talks about resilience, and the unseen battles than individuals with NF have to face. Go to this website to learn more: https://www.ctf.org/news/2026-nf-knowledge-series-from-isolation-to-empowerment-building-hope-resilience-and-community-in-nf/