Nov 7Scientific discovery has always been at the heart of CureNFwithJack's mission.We remain committed to investing in promising neurofibromatosis research, advancing therapeutic development, and strengthening scientific partnerships that move the field forward. As we look toward the future, we're also exploring how a deeper understanding of the experiences of people living with NF can help identify unmet needs and inform future research priorities. Our commitment to science remains unwavering. The opportunity ahead is to build on that commitment with an even clearer understanding of where progress is needed most. Because advancing NF research means continuing to ask bold scientific questions — and working together to find answers. #CureNFwithJack #EndNF #Neurofibromatosis #NFResearchThat collection is no longer on CureNFwithJack's Profile.
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Nov 7Scientific discovery has always been at the heart of CureNFwithJack's mission.We remain committed to investing in promising neurofibromatosis research, advancing therapeutic development, and strengthening scientific partnerships that move the field forward. As we look toward the future, we're also exploring how a deeper understanding of the experiences of people living with NF can help identify unmet needs and inform future research priorities. Our commitment to science remains unwavering. The opportunity ahead is to build on that commitment with an even clearer understanding of where progress is needed most. Because advancing NF research means continuing to ask bold scientific questions — and working together to find answers. #CureNFwithJack #EndNF #Neurofibromatosis #NFResearch
Happy Parent Appreciation Day to all the NF Parents out there!♥ 63 · Jul 26
Today is to day- wishing all of those at the 3rd Annual Swing with Izzy Golf…♥ 38 · Jun 5
Happy birthday to our co-founder, @jakeburke1!♥ 35 · Sep 22
It's that time of year again!♥ 35 · Jun 23
Introducing this year's Junior Advisory Board!♥ 33 · Sep 30
Central to CNFWJ’s mission is the involvement and support of people both within…♥ 24 · Sep 4
Happy Parent Appreciation Day to all the NF Parents out there!
♥ 63 · Jul 26
Today is to day- wishing all of those at the 3rd Annual Swing with Izzy Golf…
♥ 38 · Jun 5
Happy birthday to our co-founder, @jakeburke1!
♥ 35 · Sep 22
It's that time of year again!
♥ 35 · Jun 23
Introducing this year's Junior Advisory Board!
♥ 33 · Sep 30
Central to CNFWJ’s mission is the involvement and support of people both within…
♥ 24 · Sep 4
Collections
- CureNFwithJack Essentials
Where to start with CureNFwithJack.
NF strongThe NF Collective is hosting its next webinar on October 28, 2026.
Golf tournamentRegister for Golf before EOY and Earn Free Raffle Tickets, Free Mulligans, & More!
Stay with JackWhat started as a small get-together quickly turned into something much bigger!
- Webinar
The NF Collective is hosting its next webinar on October 28, 2026.
- Poker tournament
What started as a small get-together quickly turned into something much bigger!
NF communityAn amazing time for an amazing cause.
Scientific discovery has always been at the heart of CureNFwithJack's mission.
Nov 7
What started as a small get-together quickly turned into something much bigger!
Nov 4
It's DAF Day - a new event dedicated to honoring the lasting impact of charitable giving through…
Oct 89 likes
Thank you to @applespicenorthmetro for being this year's Player Gift Sponsor!
Sep 237 likes
Dr.
Sep 713 likes
Thank you to @matebeverage for sponsoring our Golf Classic for the second year!
Sep 118 likes
Attention NF Community!
Aug 248 likes
JOIN US TODAY, WEDNES.
Jul 206 likes
For over a decade, CureNFwithJack has been hosting events.
Jul 1314 likes
About
CureNFwithJack (“CNFWJ”) is a nonprofit corporation co-founded by Jack Burke, Jake Burke and Beth O’Brien, whose mission is to find an effective treatment or cure for individuals battling neurofibromatosis (“NF”) through the funding of research. The inspiration and motivation behind CNFWJ is their son Jack Burke, a dynamic, inspiring boy who lives with NF. CNFWJ is based in Milton, Georgia, and has been granted 501(c)(3) status.
CNFWJ is committed to accelerating medical research, driving community action, and raising funds to end NF. With Jack’s help, CNFWJ has encouraged thousands of people previously unfamiliar with NF to learn, donate and spread awareness about NF so that the vision of a cure can be realized. CNFWJ holds multiple events and golf tournaments throughout the year, raising over a million dollars on its own behalf as well as other NF-related entities [including the Children’s Tumor Foundation and Cupid’s Undies Run].
Central to CNFWJ’s goals is the involvement of and support from individuals who are not affected by NF. Your time, talent or treasure can have a profound effect on the many that suffer from this disorder. Through community interest, we can help change the face of this disorder.
We hope that creating awareness, bringing people together, and supporting the medical community in its research endeavors will lead to the day that NF no longer exists.
The mission of CNFWJ is to find an effective treatment or cure for NF through the funding of research.
Milton, GA
- Based in
- Milton, GA
- Founded
- 2015
- EIN
- 46-5178351
- Website
- curenfwithjack.com
- @curenfwithjack
- Health