Imagine finally getting an answer for the symptoms that have been affecting you for years — only to hear your doctor say, “There is no treatment and there is no cure.” The relief of a diagnosis is instantly replaced by uncertainty about how quickly your condition will progress…

how much your life will change, and what the future will hold. You learn that this disease could one day affect your children or grandchildren, and the reality sets in: right now, there are no FDA-approved therapies and little guidance to offer hope or clarity. For those living with CMT, this is the reality. This disease gradually takes away the ability to fully participate in daily life and the cherished traditions that make it meaningful — and it steals precious time. Time to continue putting up holiday villages, time to keep baking cookies with family, time to gaze at holiday lights, time to wrap presents for loved ones, and time to share in the moments without pause. This holiday season, we invite you to explore the personal stories of CMT patients — like Linda Frakes, Alexander Ferrera, Jenny Richards, and Kaileen Nelson — as they share the moments and traditions that matter most, and the challenges CMT brings. As you connect with their stories, please consider making a donation in their honor at https://cmtrf.org/the-greatest-gift/ Thanks to the Bentzin Family Foundations, your donation will be DOUBLED up to $150,000 through December 31. Every gift this holiday season, no matter the size, directly supports this vital research. Together, we can give CMT patients the greatest gift of all: a cure, and the time to continue making memories and enjoying the traditions they love. View their stories and donate today at https://cmtrf.org/the-greatest-gift/