Meet Miranda Apert Syndrome
In honor of Apert Syndrome Awareness Month, meet Miranda— a bright and determined two-year-old whose journey is nothing short of extraordinary. Miranda was born with Apert Syndrome, a rare condition that causes the bones in the skull, hands, and feet to fuse prematurely. When she came into the world, she had no separated fingers—just tiny hands full of potential.
She’s already endured three complex surgeries, with more on the horizon—including one to repair her cleft palate in hopes of helping her find her voice. But this April, Miranda reached a milestone that took her family’s breath away: her casts were removed, revealing four beautifully separated fingers on each hand.
"She is a red-headed firecracker that lights up any room she is in. She teaches everyone she meets what a warrior she is and how anything is possible." —Amber & Alex, Miranda’s parents
At Children’s Flight of Hope, we walk alongside families for the duration of their journey—whether that journey takes years or a single, life-changing flight.
On The Board Angela Eliopoulous
Over the next few issues we’ll be introducing you to our newest board members. This month, say hello to Angela Eliopoulous. Angela and her husband Dimitri have been supporters of CFOH for years, attending events when they lived in Raleigh and providing generous support. Now that they’ve relocated back to the Midwest, she’s eager to share our story throughout their wide Chicago-area network; she's already hosted her first social to talk about the mission and impact of Children’s Flight of Hope.
To the Course for the Cause
We had an unforgettable time at this year’s CFOH Golf Classic, held May 4–5 at North Ridge Country Club. From the camaraderie on the course to the friendly competition—and most importantly, the hundreds of flights made possible—it was a two-day celebration of impact and generosity.
We were especially proud to present our Community Impact Award to Choate Construction at Sunday’s Tee It Up Party, recognizing their steadfast and impactful commitment to our mission.
The most moving highlight of the weekend came from Megan Hogan. Ten years ago, Children’s Flight of Hope flew Megan for a life-changing surgery to help manage the painful and limiting effects of cerebral palsy. Today, she’s a college graduate whose journey continues to inspire. Megan shared how flights with CFOH shaped her future as a confident young woman and why she’s passionate about giving back.
A VIP Experience For a CFOH Frequent Flyer
Zeke and his family have been part of the Children’s Flight of Hope story since 2019, when we began flying him to access a clinical trial for brain cancer following a long road of surgeries, chemotherapy, and countless procedures.
But last month, his journey took a joyful detour—Zeke was a VIP guest at the Charles Schwab Challenge PGA Tour event, where he went behind the scenes with the media and spent time with some of golf’s biggest stars. The highlight? A walk-and-talk along the first hole of the Pro-Am with Jordan Spieth himself.
Hops for Hope Kickoff & Pairing Party
The countdown has officially begun for our 10th anniversary Hops For Hope! Things got off to a great start on May 28th with our annual pairing party, where brewery and corporate teams were matched up to collaborate on unique brews. Be sure to mark your calendars and join us on Saturday, September 13 to see the results and support CFOH at North Hills Midtown Park.
Dallas-Fort Worth Fundraiser
Last month we hosted our very first social gathering at the DFW Metroplex—a key area for our expanding mission, with high volumes of children flying in and out for life-saving medical care. This gathering brought together new friends and partners, united by a belief that distance and cost should never stand in the way of a child's access to specialized care.
9/13: Hops For Hope—get all the details on this family-friendly event 11/7: Denim & Diamonds—get ready to eat, drink, bid and support CFOH at the Angus Barn Watch for more details on these and other events, and reach out with questions or if you’d like to be involved. Know someone who would be inspired by our mission? Please forward this newsletter and help us spread hope and healing even further.
Your support makes everything we do possible. A one-time or recurring donation means a more hopeful future for Miranda and so many more children in need of specialized care.
