ALS United of Georgia

ACT for ALS Reauthorization Enters Final Stretch

1 min read · Long read · 2026

News & Stories

Congress has taken significant steps toward extending ACT for ALS, but the work is not yet complete. The House and Senate have each passed bipartisan legislation to reauthorize the law, which supports programs designed to accelerate ALS research, advance the development of new therapies, and expand access to investigational treatments for people living with ALS. The House and Senate bills are not identical, so Congress must now resolve the remaining differences and pass final legislation before the current authorization expires on September 30. With the House scheduled to be in session for only one more week before the November elections, there is a limited window for Congress to complete this work. ALS United of Georgia is encouraging people affected by ALS to stay engaged, share their experiences with policymakers, and remind Congress why continued support for these programs is so important. This coordinated effort builds on years of advocacy from people living with ALS, families, caregivers, researchers, clinicians, and organizations across the country. We will continue working with our partners and members to help maintain momentum and ensure ACT for ALS is reauthorized before September 30, so these critical efforts can continue without interruption. Take action by emailing your Representative Today! Take Action!

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